Charlie's audiologist sent me an email about the BAHA. She said three interesting things:
1. Her department recently had a meeting where they discussed the BAHA. "From what I've read and from recent discussions with my colleagues," she wrote, "the individuals who have unilateral hearing loss from birth/a young age and then get a Baha are less likely to find benefit from it than those who had normal hearing in both ears then later lost hearing in one ear and got a Baha. I found this information to be quite interesting and surprising." She added, "Of course each individual varies on how they will do with it, so as we have been doing, we'd need to see if it's something that Charlie would benefit from."
2. She told me there's a BAHA group, with a loaner BAHA--not the bone-conduction hearing aid that's rigged to be like a BAHA that we have been borrowing. She said an audiologist named Lynn would be happy to meet with me to discuss Charlie.
Internet: what do you think? Should my audiologist have told me about this group, oh, a LONG TIME AGO?
3. Finally she gave me the head's up that Oticon Medical, some fabulous people in Sweden (really, are there any other kind of people in Sweden?) are about to debut the next great leap forward in BAHAs. Here is the pdf brochure. It is awkwardly named "Ponto," and I keep wanting to call it Pronto or Pinto or Poncho or Pocahontas. I'll get past it.
There's an Ikea joke in there, but I can't find it right now. Or maybe a Ford Pinto joke, but I hope not.
cool about the BAHA group, but wow, could info be any harder to get? so frustrating.
Posted by: cate | June 23, 2009 at 08:19 PM
Maybe she didn't tell you about the group until she was sure she could set you up with a direct contact. Either way..too cool.
Posted by: Michelle | June 24, 2009 at 08:33 AM