You will recall Charlie's speech evaluation at Children's Hospital. I just got the bill. $1,100 for a two-hour evaluation. (For us, $200 after insurance.) "Did she use any special electronic equipment?" Jeff asked. "No," I said, "pretty much just some old dollhouse furniture." Clearly, we are in the wrong field.
I got the report about a week ago. Charlie has age appropriate receptive language skills and some weird speech substitutions; the woman recommends that he continue speech services at 1.5 hours per week.
Last week at EI, a mom, Cindy, whose son has moderate hearing loss in both ears but hears normally with hearing aids and has similar speech skills to Charlie (that is to say, not really any problems), told us about her IEP meeting. She lives in another town, so we can't compare, but this is what went down: she had the hearing loss consultant at the IEP meeting. The town gave her son integrated preschool and two speech sessions per week.
I emailed the pupil services person and asked if we could have the hearing loss consultant at Charlie's meeting, which is in a couple of weeks. "You may invite whomever you choose," she wrote back. "What is it you will believe [this person] will bring to the table?"
In other words, "We will not pay for that."
I tell Priscilla, our EI person. I also tell her that I find it interesting that everyone says we live in such a great town that is so generous with services, but my only interactions with them thus far have seemed like pulling teeth. A few minutes later Carol, the pupil services person, calls me and tells me that while she agrees that the hearing loss consultant will be a part of Charlie's plan going forward, there is no need to have her at the meeting. I was barely civil to her on the phone.
Do you have ANY IDEA what we pay in taxes to live in this town?
My son HAS HEARING LOSS and a PARALYZED FACIAL NERVE THAT MAKES IT HARD FOR HIM TO MAKE CERTAIN MOUTH MOVEMENTS. I am not a fruitcake mom. I am not making shit up. Shouldn't we continue the therapy that has lead him to succeed thus far?
Today Charlie met with with town's speech pathologist for an evaluation. Naturally she concluded that Charlie is above average in every way and needs no services at all. "They're not even substitutions, they're more like distortions," she said--"And they're age appropriate."
Jeff is coming to the IEP meeting now. It's so useful to have a husband who looks like a Hell's Angel.
Tonight I had a long talk with Julie, whose job is just like the woman who saw Charlie today. Long ago she predicted the town wouldn't pick him up for services and she was right. She made a very solid case for why Charlie really doesn't need services, though she agreed that he should be monitored. "What if he falls behind?" I asked. "He's not going to fall behind," she said. "So EI did too good of a job?" I asked. "No," she said. "He would have come this far all on his own." Then she offered to come with me to the meeting, even though she lives 45 minutes away and has a job and a six-month-old baby. I won't take her up on it, but boy, I am lucky to have such a good friend.
My instinct is that Charlie will be fine, because his teachers and Jeff and I are going to keep an eye on him. It's hard, though, to feel OK about it, when everyone else in my EI group is like, crazed for services. It makes me feel like I'm letting Charlie down if I don't hire a lawyer to screw the town.