The meeting with the special ed woman from our town went well. She mentioned the same three options that I had in mind: stay at our preschool and receive speech therapy from the town; go to the town's integrated preschool (meaning typical kids and special needs kids together) where there are speech pathologists in the classroom; or go to a specialized preschool for kids with hearing loss. The fact that she even mentioned door number three was encouraging, but when I asked for permission to tour that school--even though this is still a free country the last time I checked, I need my town's permission to even set foot in any school they would have to pay for) she balked. "I'll have to ask them," she said, meaning her bosses in the school system.
Here's where it gets weird. I like the idea of the specialized school because the teachers all have years of experience working with children with hearing loss. It's like, if your child had cucumbers instead of pinkie fingers, you know he'd be OK at a school where the teachers had never seen a child with cucumbers for pinkie fingers, but there's a school one town away where the teachers have been working with the cucumber-pinkied for decades. You'd want the cucumber pinkie school! But since Charlie has just a slight speech delay--which we don't even attribute to his hearing loss at this point--I think the town is going to refuse to pay for the cucumber pinkie school.
While the special ed woman--let's call her Holly--was at my house, I found out that the other little girl in town who has microtia didn't even qualify for a special ed slot at the integrated preschool--she's there as a typical kid.
I asked Holly what the hours are at the integrated preschool. She told me the school runs four mornings a week from 8:15 to 11:00.
This could not possibly be more useless to me. I will not be awake when I pack him off to school. By the time he is back, I will be just about done clawing my way out of my morning haze. And what about the days I go to work? I guess I'd have to have Charlie take the bus from the integrated preschool to the day care where he is now. I fail to believe that such a short time in a room where there are speech pathologists--working with other children, not with Charlie, because he'd be a typical kid--could be more beneficial to him than staying in our fantastic day care.
So this is playing out in a way that I didn't expect. It feels weird to be asking for this expensive, highly specialized school, and then turning around and saying "if you won't pay for that, then I don't want anything." Well, not not anything. I'd take speech services.
This afternoon when I picked up Summer at ballet I was chatting with a mom whose daughter was in preschool with Summer. This little girl began to lose her hearing--it was the preschool teachers who noticed it--and got diagnosed with progressive loss at age three and a half. She got hearing aids in both ears. Her parents decided to keep her at our preschool and just do lots of speech work with her at home. "Everyone told us it was the wrong decision, which as a parent was hard to hear," said the mom. I will be calling her to talk about it some more, as well as the mom of the other girl with microtia who is now at the integrated preschool and getting speech services after school from the town's speech path, as well as another mom I remember from preschool whose daughter wears hearing aids.
We have six months until Charlie turns three, but time slips away, so I'm going to make those within the next week.